Marilyn Celeste Morris has been on a virtual book tour this month and is now stopping at Paperback Writer to share with us her book, Diagnosis: Lupus: The Intimate Journal of a Lupus Patient. Her struggle to find a diagnosis for her symptoms took her 5 long years to diagnosis. Marilyn shows a courageous strength and determination and it is shown througout the advice in her book.
And my treatment took a very long time, and brought with it, not the expected relief of pain, doubt, fear and anger, but Four (Other) Horsemen of This Disease: Weight gain, high blood pressure, diabetes, and vasculitis. I must also add clinical depression, job loss, loss of income, foreclosure, lining up for food stamps, medicines and other Public Assistance services. I was truly humbled when I picked up my handicapped parking tag, food stamps and vouchers. I was infuriated by low-level clerks who used their positions of power to assert their superiority over me, verbally slapping my wrists, and at one point, one even shaking her finger at me, yet I had to submit in order to get whatever assistance they could offer.
I had a meltdown in my parish priest’s office, confessing that I needed financial help; I had a true gasping-for-air, snot-slinging hissy fit in the college library when I was told I might not be able to complete my schooling. And all this time, I tried to reassure my family and friends that I would not, could not, leave this crappy world via my own hand, even though I admitted, however, I would just like to lie down and die.
That’s what this disease did to me.
This is what this disease did for me.
I learned there is a God, and I’m not Him/Her.
I learned that God loves me as much as he loves you.
I learned I’m not perfect, never have been, never will be, and that’s okay.
I learned that this disease is not a punishment for “sins.”
I learned how to ask for help.
I learned how to be grateful for and accept that help.
I learned that things are merely objects, that money is simply a means to an end, and not the be-all and end-all of life.
I learned the difference between needs and wants.
I learned to surrender, to “Let go and let God.”
I learned that expectations are only pre-meditated resentments.
I learned not to discount the message because of the messenger.
During the last two week of her book tour some of the comments that have been left at the sites show the same strength. A few of the comments are shown here;
Marilyn, you have taken a personal challenge and used it as a way to help other face the same issues. You compassion is amazing. You ability to help others is what makes you special. Theresa Chaze
Let me just tell you that I was crying the whole time while I was reading her book, I see myself in every page. Emmy Rose
It’s obvious that you’re a courageous person with a lot of wisdom to share with others. Good luck on your tour. I’m trailing along with you. Author, Jim melvin
I hope my experiences inform you, strengthen you, and give you hope.
Diagnosis: Lupus: The Intimate Journal of a Lupus Patient is available at www.PublishAmerica.com, Amazon.com and other online bookstores, or your local bookstore may order for you.